William Heath’s blog

NHS summary care record: the irritation continues

Posted on Jul 2nd by William in Customer service, IdealGov stuff

Here’s my letter to my GP after two annoying leaflets appeared in the post:

NHS Summary Care record

Dear Dr W.

I’ve just had two leaflets from DoH about “Care record guarantee” and “Your health information”.

I said to you when you first took me on a a patient I do not consent to my health record, or indeed any of my personal data, being uploaded to a central NHS system. My work with computer scientists and lawyers leaves me in no doubt this is an ill-conceived project doomed to security breaches. I also understand that making my personal data in this way accessible to people who have no direct role in my care is under applicable European law illegal without my explicit and informed consent.

For the avoidance of any doubt: I do not give my consent. Nor does my partner give consent for the uploading of her pesonal data, and we do not give consent for the uploading of our daughter’spersonal data.

We regard our health records as safe in our GPs hands, and shared in confidence with you and beyond that only with NHS medical staff directly concerned with our care.

We look forward to making best possible use of electronic patient records when the NHS supports properly designed patient-centric records.

I’d be grateful if you could confirm again that our records have not been and wont be uploaded.

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